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Good practice Imported

Ik Onderzoek Mee — Radboudumc's Co-Designed Health Monitor for People with Low Literacy or Mild Intellectual Disability

Netherlands · Nijmegen · See the Netherlands profile

Evidence: Observational / pre–post Top 23% 92/100 · Ask Evidence Copilot about this practice

Radboudumc co-designed a simplified, text-to-speech health survey with co-researchers who have mild intellectual disabilities or low literacy. Three rounds reached 412, 351 and 296 respondents; 47% completed it with personal support.

412, 351, 296
Respondents across three survey rounds (Nov 2020-Nov 2021)
47%
Respondents completing with personal support
Ik Onderzoek Mee — Radboudumc's Co-Designed Health Monitor for People with Low Literacy or Mild Intellectual Disability

Details

Maturity
Scaling
Promoter
Radboud University Medical Center (Radboudumc), with MEE, STERKplaats LFB Nijmegen and Foundation ABC
Period
Monitor rounds November 2020 – November 2021; programme ongoing through 2024–2025 publications
Region (NUTS)
NL22
Keywords
public health, disability inclusion, participatory research, digital accessibility

Context

An estimated 2.5 million Dutch adults have low literacy, and people with mild intellectual disabilities are routinely excluded from population health surveys because standard questionnaires are too complex.

Activities

Radboudumc, working with co-researchers with lived experience from MEE, STERKplaats LFB Nijmegen and Foundation ABC, redesigned a COVID-19 health monitor into an accessible platform ('Ik Onderzoek Mee') using simplified language, reduced answer categories and text-to-speech support.

Results

The monitor was fielded in three cross-sectional rounds (Nov 2020-Nov 2021), gathering 412, then 351, then 296 respondents; 47% completed it with personal support. The accessible design let the team detect that this population reported more negative emotions and more difficulty understanding and following COVID-19 guidance than the general population.

Conclusions

Findings were published in TSG in March 2024, and the co-design lessons subsequently informed a follow-up participatory study on inclusive questionnaire design, indicating the practice has moved from a one-off adaptation toward a reusable, documented methodology.

Implementation

Indicative cost
Low (< €50k)
Time to results
Medium (1–3 years)
Staffing & skills
Radboudumc primary and community care departments, co-researchers from MEE, STERKplaats LFB Nijmegen and Foundation ABC

Conditions for success

  • co-design with people who have lived experience of low literacy or mild intellectual disability
  • recruitment through trusted community organisations

Commonly funded by

National / regional programmes

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Data sources

Where this practice's information was retrieved from, and when.

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